A baby is born with CF every four days. Most won’t make it to 40. Cystic Fibrosis is the most common life-shortening recessive genetic condition effecting young Australian’s today.
Cystic Fibrosis ACT is dedicated to making a daily difference to the lives of children and young adults living with cystic fibrosis in the ACT and surrounding regions through financial, emotional and educational support.
Our Essential Vitamins (VitABDECK) program provides all children and adults living with Cystic Fibrosis in the ACT and surrounding areas with a 12 month supply of their essential vitamins.
Cystic fibrosis causes thick and sticky muscous to build up in the lungs, airways and other vital organs. The build up in the pancreas destroys the ability for it to function normally and the body is not able to absorb vitamins at adequate levels from foods. If ignored these deficiencies can lead to nerve damage, liver disease and bone demineralisation.
VitABDECK is a supplement prescribed to children with CF from approximately 6 months and they are required to take this every day for their whole lives. The Essential Vitamins program ensures all suffers of Cystic FIbrosis in the ACT and surrounding area have access to these essential vitamins and reduces the burden of ordering, stocktaking and managing the supplements for the individual or family.
The cost for a child to take VitABDECK for 12 months is $150pp, this is doubled to $300pp when they become an adult. Your support of this project will provide 12 months supply to 35 children and young adults in the ACT and surrounding area.
On the outside Bella is a beautiful looking girl, which is in stark contrast to her reality. Bella’s reality is a day to day battle to stay healthy on the inside, which involves daily multiple medications and vitamins, daily physiotherapy, regular CF clinic visits, blood tests, chest x-rays and numerous hospitalisations.
Bella lives life the same way as she arrived into the world – in a hurry and with fierce determination to thrive.
You can make a daily difference to the lives of children and young adults living with cystic fibrosis in the ACT, like Bella by supporting the Essential Vitamins program.
Amount sought: $7200
Period: 12 months
Expiry: July 2014
Contact: Heidi Bock